General
disability/adult disabilities
Brain and Spinal Cord Resource
"Our mission is to be the most reliable, timely and complete resource on the internet for brain injury and spinal cord injury survivors. Our hope is that this site will become relied upon as a trustworthy resource for the community and for those who are searching for information."
http://www.brainandspinalcord.org/
The Travis Roy Foundation
"The individual grant funds have been used to modify vans and to purchase wheelchairs, computers, ramps, shower chairs, and other adaptive equipment to help paraplegics and quadriplegics live their lives."
http://www.travisroyfoundation.org/
National Organization for Rare Disorders
"Is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases."
http://www.rarediseases.org/
The Arc
"The Arc of the United States advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities."
http://www.thearc.org
National Anxiety Foundation
Subjects include: obsessive compulsive disorder, panic disorder, terrorism fear.
http://www.lexington-on-line.com/naf.html
Myositis information site
Myositis is the swelling of muscles due to infection, injury, exercise. This site has information concerning
this problem.
http://www.myositis.org/about_myositis/index.cfm
National Institute Neurological Disorders and Stroke.
Their mission is to reduce the burden of neurological
disease. http://www.ninds.nih.gov/index.htm
Down Syndrome:
Health Issues written by Dr. Len Leshin, M.D.
Contains articles
about children with DS. Articles include dealing with:
Obstructive Sleep Apnea, Musculoskeletal Disorders and DS, Blood
Disorders and DS, plus articles written by guest
physicians.
http://www.ds-health.com
Vitamin D deficiency linked to disease
"Scientists have mapped the points at which vitamin D interacts with our DNA
and identified over 200 genes directly influenced by vitamin D. The results are published in the journal Genome Research."
http://www.ox.ac.uk/media/news_stories/2010/240810.html
Foundation for Ichthyosis and Related Skin Types
"FIRST is a vibrant, growing foundation connected to its members and
families by the special skin and unique management needs of individuals and families with ichthyosis and related skin types.
"Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support,
information, advocacy, and research funding for better treatments and eventual cures."
http://www.firstskinfoundation.org/index.cfm
Helping Hands: Monkey Helpers for the Disabled
"Monkey Helpers for the Disabled is a unique national non-profit 501(c)(3) organization that places specially trained capuchin monkeys with people who are paralyzed, or who suffer other severe mobility impairments."
http://www.monkeyhelpers.org/
Pain
Pain Management
by the Mayo Clinic
Resources, articles, and self-help resources
http://www.mayoclinic.com/health/pain/
Arthritis
Management
Rehabilitation, pain management, exercise and
more
http://www.hopkins-arthritis.som.jhmi.edu/mngmnt
National Pain Foundation
"An on-line educational and support community for
persons in pain, their families and physicians. Your source for treatment options and pain information that is peer reviewed by leading pain specialists."
http://www.painconnection.org/
Medical Information Network
This site is full of good information concerning: chronic pain, fatigue,
fibromyalgia, RSD, and more. Very useful site. http://www.medicinenet.com/script/main/hp.asp
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